International multi-site survey on the use of online support groups in bipolar disorder
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International multi-site survey on the use of online support groups in bipolar disorder. / Bauer, Rita; Conell, Jörn; Glenn, Tasha; Alda, Martin; Ardau, Raffaella; Baune, Bernhard T; Berk, Michael; Bersudsky, Yuly; Bilderbeck, Amy; Bocchetta, Alberto; Bossini, Letizia; Castro, Angela M Paredes; Cheung, Eric Y W; Chillotti, Caterina; Choppin, Sabine; Zompo, Maria Del; Dias, Rodrigo; Dodd, Seetal; Duffy, Anne; Etain, Bruno; Fagiolini, Andrea; Hernandez, Miryam Fernández; Garnham, Julie; Geddes, John; Gildebro, Jonas; Gonzalez-Pinto, Ana; Goodwin, Guy M; Grof, Paul; Harima, Hirohiko; Hassel, Stefanie; Henry, Chantal; Hidalgo-Mazzei, Diego; Kapur, Vaisnvy; Kunigiri, Girish; Lafer, Beny; Larsen, Erik R; Lewitzka, Ute; Licht, Rasmus W; Hvenegaard Lund, Anne; Misiak, Blazej; Piotrowski, Patryk; Monteith, Scott; Munoz, Rodrigo; Nakanotani, Takako; Nielsen, René E; O'donovan, Claire; Okamura, Yasushi; Osher, Yamima; Reif, Andreas; Ritter, Philipp; Rybakowski, Janusz K; Sagduyu, Kemal; Sawchuk, Brett; Schwartz, Elon; Scippa, Ângela M; Slaney, Claire; Sulaiman, Ahmad H; Suominen, Kirsi; Suwalska, Aleksandra; Tam, Peter; Tatebayashi, Yoshitaka; Tondo, Leonardo; Vieta, Eduard; Vinberg, Maj; Viswanath, Biju; Volkert, Julia; Zetin, Mark; Whybrow, Peter C; Bauer, Michael.
In: Nordic Journal of Psychiatry, Vol. 71, No. 6, 2017, p. 473-476.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - International multi-site survey on the use of online support groups in bipolar disorder
AU - Bauer, Rita
AU - Conell, Jörn
AU - Glenn, Tasha
AU - Alda, Martin
AU - Ardau, Raffaella
AU - Baune, Bernhard T
AU - Berk, Michael
AU - Bersudsky, Yuly
AU - Bilderbeck, Amy
AU - Bocchetta, Alberto
AU - Bossini, Letizia
AU - Castro, Angela M Paredes
AU - Cheung, Eric Y W
AU - Chillotti, Caterina
AU - Choppin, Sabine
AU - Zompo, Maria Del
AU - Dias, Rodrigo
AU - Dodd, Seetal
AU - Duffy, Anne
AU - Etain, Bruno
AU - Fagiolini, Andrea
AU - Hernandez, Miryam Fernández
AU - Garnham, Julie
AU - Geddes, John
AU - Gildebro, Jonas
AU - Gonzalez-Pinto, Ana
AU - Goodwin, Guy M
AU - Grof, Paul
AU - Harima, Hirohiko
AU - Hassel, Stefanie
AU - Henry, Chantal
AU - Hidalgo-Mazzei, Diego
AU - Kapur, Vaisnvy
AU - Kunigiri, Girish
AU - Lafer, Beny
AU - Larsen, Erik R
AU - Lewitzka, Ute
AU - Licht, Rasmus W
AU - Hvenegaard Lund, Anne
AU - Misiak, Blazej
AU - Piotrowski, Patryk
AU - Monteith, Scott
AU - Munoz, Rodrigo
AU - Nakanotani, Takako
AU - Nielsen, René E
AU - O'donovan, Claire
AU - Okamura, Yasushi
AU - Osher, Yamima
AU - Reif, Andreas
AU - Ritter, Philipp
AU - Rybakowski, Janusz K
AU - Sagduyu, Kemal
AU - Sawchuk, Brett
AU - Schwartz, Elon
AU - Scippa, Ângela M
AU - Slaney, Claire
AU - Sulaiman, Ahmad H
AU - Suominen, Kirsi
AU - Suwalska, Aleksandra
AU - Tam, Peter
AU - Tatebayashi, Yoshitaka
AU - Tondo, Leonardo
AU - Vieta, Eduard
AU - Vinberg, Maj
AU - Viswanath, Biju
AU - Volkert, Julia
AU - Zetin, Mark
AU - Whybrow, Peter C
AU - Bauer, Michael
PY - 2017
Y1 - 2017
N2 - BACKGROUND: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient's convenience. Prior research in bipolar disorder has reported value from online support groups.AIMS: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking.METHODS: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data.RESULTS AND CONCLUSIONS: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.
AB - BACKGROUND: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient's convenience. Prior research in bipolar disorder has reported value from online support groups.AIMS: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking.METHODS: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data.RESULTS AND CONCLUSIONS: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.
KW - Adult
KW - Bipolar Disorder/epidemiology
KW - Female
KW - Humans
KW - Internationality
KW - Internet/utilization
KW - Male
KW - Middle Aged
KW - Self-Help Groups/utilization
KW - Surveys and Questionnaires
U2 - 10.1080/08039488.2017.1334819
DO - 10.1080/08039488.2017.1334819
M3 - Journal article
C2 - 28696841
VL - 71
SP - 473
EP - 476
JO - Nordisk Psykiatrisk Tidsskrift
JF - Nordisk Psykiatrisk Tidsskrift
SN - 0803-9496
IS - 6
ER -
ID: 194912136