Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors
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Patient ambassador support : Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors. / Nørskov, Kristina Holmegaard; Overgaard, Dorthe; Lomborg, Kirsten; Kjeldsen, Lars; Jarden, Mary.
I: European Journal of Cancer Care, Bind 29, Nr. 6, e13289, 2020.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - Patient ambassador support
T2 - Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors
AU - Nørskov, Kristina Holmegaard
AU - Overgaard, Dorthe
AU - Lomborg, Kirsten
AU - Kjeldsen, Lars
AU - Jarden, Mary
PY - 2020
Y1 - 2020
N2 - Objective: The study explores how newly diagnosed patients with acute leukaemia and their patient ambassadors experience the mentorship during the patient ambassador support programme. Methods: Explorative semi-structured individual interviews (n = 28) were carried out in patients with acute leukaemia (n = 15) and their patient ambassadors (n = 13). Interpretive description was the methodological framework used for the thematic analysis of the qualitative interview data. Results: Identified themes were as follows: (a) exchanging life experiences (subthemes: individualised support and a meaningful return); (b) existential cohesion; (c) interreflection; and (d) terms and conditions (subtheme: break in journey). Patients experienced a feeling of being understood, the cohesion leading to hope and a feeling of being able to cope with their situation. Patient ambassadors experienced a sense of meaningfulness and gratitude for life. Conclusions: Patients and patient ambassadors experienced benefits from the individualised support. Their shared experiences created a connection and mutual mirroring, which led to a sense of hope and gratitude for life. Initiatives that introduce peer-to-peer support in newly diagnosed patients with acute leukaemia as part of treatment and in daily clinical practice are crucial. Future studies should further examine the feasibility of peer-to-peer support interventions along the trajectory of acute leukaemia.
AB - Objective: The study explores how newly diagnosed patients with acute leukaemia and their patient ambassadors experience the mentorship during the patient ambassador support programme. Methods: Explorative semi-structured individual interviews (n = 28) were carried out in patients with acute leukaemia (n = 15) and their patient ambassadors (n = 13). Interpretive description was the methodological framework used for the thematic analysis of the qualitative interview data. Results: Identified themes were as follows: (a) exchanging life experiences (subthemes: individualised support and a meaningful return); (b) existential cohesion; (c) interreflection; and (d) terms and conditions (subtheme: break in journey). Patients experienced a feeling of being understood, the cohesion leading to hope and a feeling of being able to cope with their situation. Patient ambassadors experienced a sense of meaningfulness and gratitude for life. Conclusions: Patients and patient ambassadors experienced benefits from the individualised support. Their shared experiences created a connection and mutual mirroring, which led to a sense of hope and gratitude for life. Initiatives that introduce peer-to-peer support in newly diagnosed patients with acute leukaemia as part of treatment and in daily clinical practice are crucial. Future studies should further examine the feasibility of peer-to-peer support interventions along the trajectory of acute leukaemia.
KW - acute leukaemia
KW - mentorship
KW - patient ambassador
KW - peer support
KW - qualitative interviews
KW - social support
U2 - 10.1111/ecc.13289
DO - 10.1111/ecc.13289
M3 - Journal article
C2 - 32596951
AN - SCOPUS:85087213275
VL - 29
JO - European Journal of Cancer Care
JF - European Journal of Cancer Care
SN - 0961-5423
IS - 6
M1 - e13289
ER -
ID: 246722804