A Review of Major Danish Biobanks: Advantages and Possibilities of Health Research in Denmark
Publikation: Bidrag til tidsskrift › Review › Forskning › fagfællebedømt
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A Review of Major Danish Biobanks : Advantages and Possibilities of Health Research in Denmark. / Laugesen, Kristina; Mengel-From, Jonas; Christensen, Kaare; Olsen, Jørn; Hougaard, David M.; Boding, Lasse; Olsen, Anja; Erikstrup, Christian; Hetland, Merete Lund; Høgdall, Estrid; Kjaergaard, Alisa D.; Sørensen, Erik; Brügmann, Anja; Petersen, Eva Rabing Brix; Brandslund, Ivan; Nordestgaard, Børge G.; Jensen, Gorm B.; Skajaa, Nils; Troelsen, Frederikke Schønfeldt; Fuglsang, Cecilia Hvitfeldt; Svingel, Lise Skovgaard; Sørensen, Henrik T.
I: Clinical Epidemiology, Bind 15, 2023, s. 213-239.Publikation: Bidrag til tidsskrift › Review › Forskning › fagfællebedømt
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TY - JOUR
T1 - A Review of Major Danish Biobanks
T2 - Advantages and Possibilities of Health Research in Denmark
AU - Laugesen, Kristina
AU - Mengel-From, Jonas
AU - Christensen, Kaare
AU - Olsen, Jørn
AU - Hougaard, David M.
AU - Boding, Lasse
AU - Olsen, Anja
AU - Erikstrup, Christian
AU - Hetland, Merete Lund
AU - Høgdall, Estrid
AU - Kjaergaard, Alisa D.
AU - Sørensen, Erik
AU - Brügmann, Anja
AU - Petersen, Eva Rabing Brix
AU - Brandslund, Ivan
AU - Nordestgaard, Børge G.
AU - Jensen, Gorm B.
AU - Skajaa, Nils
AU - Troelsen, Frederikke Schønfeldt
AU - Fuglsang, Cecilia Hvitfeldt
AU - Svingel, Lise Skovgaard
AU - Sørensen, Henrik T.
N1 - Publisher Copyright: © 2023 Laugesen et al. This work is published and licensed by Dove Medical Press Limited.
PY - 2023
Y1 - 2023
N2 - Biobank research may lead to an improved understanding of disease etiology and advance personalized medicine. Denmark (population ~5.9 million) provides a unique setting for population-based health research. The country is a rich source of biobanks and the universal, tax-funded healthcare system delivers routinely collected data to numerous registries and databases. By virtue of the civil registration number (assigned uniquely to all Danish citizens), biological specimens stored in biobanks can be combined with clinical and demographic data from these population-based health registries and databases. In this review, we aim to provide an understanding of advantages and possibilities of biobank research in Denmark. As knowledge about the Danish setting is needed to grasp the full potential, we first introduce the Danish healthcare system, the Civil Registration System, the population-based registries, and the interface with biobanks. We then describe the biobank infrastructures, comprising the Danish National Biobank Initiative, the Bio-and Genome Bank Denmark, and the Danish National Genome Center. Further, we briefly provide an overview of fourteen selected biobanks, including: The Danish Newborn Screening Biobank; The Danish National Birth Cohort; The Danish Twin Registry Biobank; Diet, Cancer and Health; Diet, Cancer and Health – Next generations; Danish Centre for Strategic Research in Type 2 Diabetes; Vejle Diabetes Biobank; The Copenhagen Hospital Biobank; The Copenhagen City Heart Study; The Copenhagen General Population Study; The Danish Cancer Biobank; The Danish Rheumatological Biobank; The Danish Blood Donor Study; and The Danish Pathology Databank. Last, we inform on practical aspects, such as data access, and discuss future implications.
AB - Biobank research may lead to an improved understanding of disease etiology and advance personalized medicine. Denmark (population ~5.9 million) provides a unique setting for population-based health research. The country is a rich source of biobanks and the universal, tax-funded healthcare system delivers routinely collected data to numerous registries and databases. By virtue of the civil registration number (assigned uniquely to all Danish citizens), biological specimens stored in biobanks can be combined with clinical and demographic data from these population-based health registries and databases. In this review, we aim to provide an understanding of advantages and possibilities of biobank research in Denmark. As knowledge about the Danish setting is needed to grasp the full potential, we first introduce the Danish healthcare system, the Civil Registration System, the population-based registries, and the interface with biobanks. We then describe the biobank infrastructures, comprising the Danish National Biobank Initiative, the Bio-and Genome Bank Denmark, and the Danish National Genome Center. Further, we briefly provide an overview of fourteen selected biobanks, including: The Danish Newborn Screening Biobank; The Danish National Birth Cohort; The Danish Twin Registry Biobank; Diet, Cancer and Health; Diet, Cancer and Health – Next generations; Danish Centre for Strategic Research in Type 2 Diabetes; Vejle Diabetes Biobank; The Copenhagen Hospital Biobank; The Copenhagen City Heart Study; The Copenhagen General Population Study; The Danish Cancer Biobank; The Danish Rheumatological Biobank; The Danish Blood Donor Study; and The Danish Pathology Databank. Last, we inform on practical aspects, such as data access, and discuss future implications.
KW - biobank
KW - epidemiology
KW - healthcare system
KW - precision medicine
KW - registries
KW - research
U2 - 10.2147/CLEP.S392416
DO - 10.2147/CLEP.S392416
M3 - Review
C2 - 36852012
AN - SCOPUS:85148939802
VL - 15
SP - 213
EP - 239
JO - Clinical Epidemiology
JF - Clinical Epidemiology
SN - 1179-1349
ER -
ID: 363061842