A personalized dementia care intervention for family carers from minority ethnic groups in Denmark: A pilot study
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A personalized dementia care intervention for family carers from minority ethnic groups in Denmark : A pilot study. / Nielsen, T. Rune; Nielsen, Dorthe S.; Waldemar, Gunhild.
I: Dementia, Bind 21, Nr. 2, 2022, s. 477-488.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - A personalized dementia care intervention for family carers from minority ethnic groups in Denmark
T2 - A pilot study
AU - Nielsen, T. Rune
AU - Nielsen, Dorthe S.
AU - Waldemar, Gunhild
N1 - Publisher Copyright: © The Author(s) 2021.
PY - 2022
Y1 - 2022
N2 - Background: There is a growing number of people with dementia in minority ethnic groups in Denmark. Support for the increasing number of family carers from minority ethnic groups is crucial, as caring for a relative with dementia may negatively affect the carer’s health and quality of life. The aim of this study was to determine the feasibility of a personalized intervention for family carers from minority ethnic groups. The intervention was a modified version of a culturally sensitive case-management program developed in Australia which had been shown to improve carers’ sense of competence in managing dementia and their mental well-being. Methods: A small pilot trial was used to examine the feasibility and preliminary efficacy of the intervention. Feasibility indicators included data on recruitment, retention, adherence, and fidelity. Acceptability and suitability of the intervention was explored in post-intervention interviews with family carers, and baseline and follow-up scores for outcome measures were examined. Results: Ten (30%) of 33 eligible family carers consented to participate in the study, but three were lost to follow-up and seven (70%) family carers completed the trial. Intervention fidelity, acceptance, and satisfaction were high. Results for outcome measures indicated that the intervention may improve family carers’ sense of competence by helping them cope better with challenges relating to caring and managing dementia and improved their satisfaction with primary care services. Conclusions: The results suggest that the intervention is feasible and worth exploring for family carers of people with dementia from minority ethnic groups in Denmark.
AB - Background: There is a growing number of people with dementia in minority ethnic groups in Denmark. Support for the increasing number of family carers from minority ethnic groups is crucial, as caring for a relative with dementia may negatively affect the carer’s health and quality of life. The aim of this study was to determine the feasibility of a personalized intervention for family carers from minority ethnic groups. The intervention was a modified version of a culturally sensitive case-management program developed in Australia which had been shown to improve carers’ sense of competence in managing dementia and their mental well-being. Methods: A small pilot trial was used to examine the feasibility and preliminary efficacy of the intervention. Feasibility indicators included data on recruitment, retention, adherence, and fidelity. Acceptability and suitability of the intervention was explored in post-intervention interviews with family carers, and baseline and follow-up scores for outcome measures were examined. Results: Ten (30%) of 33 eligible family carers consented to participate in the study, but three were lost to follow-up and seven (70%) family carers completed the trial. Intervention fidelity, acceptance, and satisfaction were high. Results for outcome measures indicated that the intervention may improve family carers’ sense of competence by helping them cope better with challenges relating to caring and managing dementia and improved their satisfaction with primary care services. Conclusions: The results suggest that the intervention is feasible and worth exploring for family carers of people with dementia from minority ethnic groups in Denmark.
KW - Alzheimer’s disease
KW - dementia
KW - family carers
KW - minority groups
KW - psychosocial intervention
KW - services
U2 - 10.1177/14713012211046597
DO - 10.1177/14713012211046597
M3 - Journal article
C2 - 34605285
AN - SCOPUS:85116475734
VL - 21
SP - 477
EP - 488
JO - Dementia
JF - Dementia
SN - 1471-3012
IS - 2
ER -
ID: 284407158